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If anyone would like to talk to another family that has a child or young person with Cystinosis please see below: Western Australia : The Scott family -- phone 0895312135 mobile- 0407196685 Support Group email- cystinosis.australia@bigpond.com The Conway family-- phone 08-94195874 The Hall Family-- phone 08-97524297 New South Wales: The Connors family-- phone 02-49651831(mum-Judy has hearing problem, please speak clearly) The Moore Family -- 02-63375814 The Diaz Family--
02-47399953 Victoria: The Yacoub family--03-94365614 The Macaulay family--03-98770260 The Andrew family-- 03-97968748 The Holcombe Family-- 03-53522476
Maria Pekli and Daniel Kelly-- 03-93301006 Queensland: The Dodd family--07-41290079 The Glass Family -- 07-33903103 The Beerling Family-- 07-33567827 The Woodward Family-- 07-32698909 Tasmania: The Perry Family-- 03-62489311 South Australia: The Dodd Family-- 08-82841512 New Zealand: The Foster Family-- 03 4531117 The Graham Family-- 094329024 This list will be added to as families join our support group. |
