Since our support group has been up and running we have a number of people to thank for their support:

The Northam Lions club- of Western Australia for their donation of a laptop

                               computer.

The Apex Club of York- Western Australia for their donation of $100.00

Mr. Ted Hughes- Medina ,Western Australia for his donation of a trip to Paris to

                              attend the International conference on Cystinosis for Sue &

                              Serena Scott.

The  Macaulay Family- Victoria, Australia for their donation of $100.00

The Andrews Family  Victoria, Australia for their donation of $50.00

Ben Hawkins-  York, Western Australia for the donation of a Colour Ink Jet Printer and also, for technical assistance with our web page and newsletter. 

The U.S.A  Cystinosis Foundation- Mrs. Jean Hotz and Mr. Frank Ritchie for their

                        never ending support and encouragement as well as setting up an

                        Australian web page. They have also supplied us with much literature

                        that we have been able to send on to all our Australian families and

                        doctors. Many thanks.

The Cystinosis Foundation of UK & Eire-  Jonathan Terry & Paul Beckwith who

                        have given us much encouragement to push ahead and start a

                        support group for Australia.

Orphan Australia-  We wish to thank Orphan Australia for their help and support with brochures and pill timers, and of course the Cystagon. Also the sponsorship for our 1st Cystinosis Conference in Australia, September 9th and 10th 2006

Carers W.A.-  For the Family Leadership and Initiative Grant that enabled us to have our 1st Cystinosis Conference in W.A.

Atrium Hotel Mandurah W.A.  For their assistance with our Cystinosis Conference September 2006.

Holcombe Family Victoria For their donation of $5000 for the Support Group.

Many Residents from Pinjarra and Mandurah- Who have been buying Cadbury's chocolate for the past year! Thankyou for your assistance in helping to raise funds for our support group. 

 

Many thanks to all the Australian families who have shared their lives and stories.

Without you we would not have a support group at all.